Posted by: cnycreativeconcepts
August 26, 2016
This morning Elyse Clough, of Westmoreland, was in my Washington, D.C. office with her parents Kim and Tom, and her older brother, Nathan for National Hydrocephalus Awareness Day on Capitol Hill.
Elyse, who is 7, is the Pediatric Hydrocephalus Foundation, Inc.’s 2016 National Ambassador of Hydrocephalus Awareness. Hydrocephalus is a medical condition caused when an excess of fluid causes swelling and pressure on the brain. It has no known cure, and the only treatment is a shunt implant – and Elyse has had many. She suffers from many symptoms including seizures and most recently underwent surgery last week to replace her shunt that failed.
I urge my colleagues in the House to sign on to H.R. 2313 to advance research for hydrocephalus in hope of finding a cure by 2020. In upstate New York, people can get more information by visiting our local Reach Organization.
Let’s help this brave girl and all those who suffer from hydrocephalus move closer toward a cure.